2 years ago

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2 years ago, I had a benign tumor removed from my brain. The surgery went well, and the incision site has healed pretty well, although it still hurts at times. The tumor was squeezing my cerebrum on the left side of my head, causing what, for all intents and purposes, were short circuits in my brain. At times, my memory would completely disappear for several minutes. The partial brain seizures were frightening, and when I told people about them, even my doctor, I received the advice, just get your blood sugar under control.

It took a trip to the emergency room to get a CAT scan that finally showed what was wrong. To be fair, I was also experiencing intense anger at the time, and when I was told that my wife couldn't accompany me into an MRI, I couldn't face it because of claustrophobia and anger, several months before the ER trip.

The memory problems and the anger abated after the surgery, but I sometimes feel that removing the tumor was worse than it's presence. I now stutter, which I never did before. I forget things and can't even remember words. I am extremely clumsy now. I've probably broken more correlle (sp?) dishes in the last two years than I did in the 49 years before (I have a marble floor in my kitchen, and the dishes don't like falling on it.)

Worse yet, I used to be able to play 26 or so instruments. I've only tried 2 since the surgery, and find that my creativity is gone as far as music, and I can't even count out beats that I used to simply know. I used to compose music, and have even produced 2 albums that I distributed to my friends.

Thankfully, when writing, I have the ability to wait for the words to return (although my editor / beta reader sometimes comes up with some wonderfully mixed metaphors.)

Before the surgery, I was writing an HTML routine that would run on my personal server and figure my wife and my budget, complete with a routine that would predict the length of time to get out of debt. After the surgery, it was never finished. I suppose if I can't compose music, I can't write a HTML routine, although before I was proficient in several programming languages.

It was bad enough having both Tourette's Syndrome and Aspergers at the same time, but now adding the new problems in, and sometimes I feel completely worthless. I drove truck, school bus, fire trucks. I used to be a fire commissioner. My biggest problem was being autistic, I get bored with jobs and have to change frequently. Now, I'm home all the time because I'm unable to work except caring for two relatives, in my own home, at my own pace.

I know the useless feelings are my own depression raising its ugly head, and that I'm doing something useful, but that doesn't stop those feelings.

I have a letter from my neurologist forbidding me from driving for work because of the partial brain seizures. For most of my life, I've done driving jobs, and they just instituted a federal law stating that January 1st of this year, if you don't have a valid physical, you lose your commercial drivers license.

Throughout this, I've never once been tempted to end it all, but I'll tell ya. There are times I just want to walk away from everything and start a new life far away from this, but... Not much way to get rid of the problems I'm facing now.

Why am I writing this? Just having a bad day altogether. I guess I need some hugs? IDK. Maybe I just want to get it off my chest, figuratively. Maybe it's a warning. If something ever happens and you're having problems with your thinking processes, get it checked out immediately. Even if you're claustrophobic.

Just writing something about it like this helps. LOL. Just like talking to a therapist.

Anyway, I hope you all have a better day than I've had.

--Rosemary

Comments

Sweet Hugs...!

tmf's picture

All the Hugs and Huggles that you need.

Peace and Love tmf

Thanks.

Rose's picture

I appreciate it.

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Hugs!
Rosemary

huggles, Rose

I'm so sorry you're feeling down. If it helps, you're a useful member of the community here, I know you've cheered me up many times, and I'm sure I'm not the only one. Have a few huggles to cuddle with until you feel better.

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What's Important?

You are a terrific person. The limitations you describe are real and seem very unfair. You've been dealt a very bad hand.

To continue that metaphor, good poker players win with bad hands and good hands. It's not the hand, it's how you play it.

The important things in life seem to be intact for you.

Embrace what you can do, which appears to be quite a lot.

Find support in real life. Don't allow yourself to be isolated. Talk it out. Practice compassion. Set a course. Enjoy your new accomplishments.

Jill

Angela Rasch (Jill M I)

You know

Patricia Marie Allen's picture

With our involvement on Roses, you know that I have the highest respect for you as an author and as a person. I know that our minds will play tricks on us and it seem that often our own thoughts are our worst enemy.

I could go on about the power of positive thinking, but it's not our conscious thoughts that get us down it's what wells up when we don't have our guard up. Those insidious lies our subconscious sneaks in between all the things that we are busy with. All I can say is hang in. Don't submit to those lies.

BTW, I was surprised that the Feds just made it a law that you must have a valid physical or lose your CDL. I live in Oregon and that's been on the state books since the inception of CDL. I used to be able to get a two year medical card. But now, when you're over 65 you only get a one year.

I hold a Class A CDL and pulled a 53' trailer for the last 12 years before I retired (3 years ago) and I now drive school bus. The school bus means I have to have a driving test yearly as well.

Hugs
Patricia

Happiness is being all dressed up and HAVING some place to go.
Semper in femineo gerunt
Ich bin eine Mann

To drive interstate, I had to

Rose's picture

To drive interstate, I had to have a valid physical. Intrastate I didn't, which is how I kept it this long.

I suppose it makes it feel worse, as I was a teacher for new drivers, even teaching them how to pull my a-train.

Thank you so much for your words of encouragement, Pat. I really appreciate it.

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Hugs!
Rosemary

Huggles for you

Stay with us, talk with us, write your stories for us. And we'll be here for you.

Oh fun!

Rose's picture

My tablet messed up and posted a comment twice!

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Hugs!
Rosemary

Well

Andrea Lena's picture

I worked part-time in a maintenance department at a nearby factory while going to school in the mid-eighties. The mechanics had an informal motto... "We do it right because we do it twice."

Hugs for both comments!

  

To be alive is to be vulnerable. Madeleine L'Engle
Love, Andrea Lena

I spent the evening with my

Rose's picture

I spent the evening with my grandson tonight. He's a great toddler, and has boundless energy. Thank God I have a Kelpie / Border Collie who loves fetching. They are more than welcome to exhaust each other!

Lol. Everytime I play my piano, he wants to help too. It's fine until he starts hitting the keys with a Weeble.

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Needless to say, he cheered me up a lot.

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Hugs!
Rosemary