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I wanted to write a note of thanks to everyone here, whether writers, or readers, or kind and patient administrators and other lovely sisters (and brothers,too.) I go back to NYC on the 28th for more testing. My tremors have only abated somewhat, but my doctor assures me that much of it can be addressed with an adjustment in medication. That's the "bad" news. The GOOD news is that you have become such good friends and family to me over the past few months. Even through this frightening time...yes, in spite of my faith in God's plan and protection for me, this stuff is scary, and I don't know how I would have coped without you. My wife and son have been tremendous, but how much more can God bless me when He's already given your love and encouragement and support to me; you are a real blessing, each and every one of you, and I am so glad I have you in my life. Not to exclude anyone, but just to say in general that I have only a few friends in my life I can actually envision when I close my eyes, apart from my huge support by my own family and in-laws. But without the image, I can close my eyes and list at least four or five girls here that have become so close as to number them with my closest oldest friends. Part of my diagnosis includes a problem that promises to be no longer a problem very soon. The tremors are not responding as much as we anticipated, and the problem apparently is affected differently in each person that has ET, so I can look forward to challenges that are difficult, perhaps even fairly annoying, but nowhere near some of the stuff some of you deal with every day. I am grateful for my health, such as it is, because at least I know it won't get much worse and I know what I'm facing. For you dear ones who are suffering so much, my heart weeps for you, and I try to pray every day for you. You are my heroes; my example, my friends, some my mentors, and all of you my family, as much as if we were born from the same family. God bless you all and thank you for your prayers, your support and your love. Andrea
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Essential Tremor
Good luck. When starting on tremor medications, it takes a while to find the right one and the right dosage. Be alert for triggers, though - stress, even pain, frustration-all can trigger bad days.Also, contact the International Essential Tremor Foundation (IETF), on the web. They have a lot of information including information easily shared with your primary care physician, who, more than likely, has never heard of this. They can also tell you if there is an organized support group where you live. A group of people with the same problem can be a tremendous help. You'll find practical solutions to everyday situations that professionals probably can't advise you about. If there isn't one, think about starting one. There are a lot of folks to help you do this.
Keep at it. It won't go away but can be controlled.
Than You for yor kindness
You are quite welcome. This site has helped me with a lot of insight. I like learning and this site does provide an education as well as a comradarie that is second to none.
Jill Micayla
May you have a wonderful today and a better tomorrow
Jill Micayla
Be kinder than necessary,Because everyone you meet
Is fighting some kind of battle.
Drea, Please Take Care
I look forward to your stories, and I hope and pray for your healing.
May Your Light Forever Shine
May Your Light Forever Shine
Get Better Andrea
I'll be praying for you. I'll be in surgery Wednesday too. So for a little, while I'm unconscious, I'll try to pray there as well too =^.^=
Sephrena Lynn Miller
BigCloset TopShelf
TGLibrary.com
Hi Drea, I also have
Hi Drea,
I also have essential tremors, aka ET, parathesias and myoclonus. Yeah, it stinks. I get frustrated and down about it from time to time. Nothing works 100% for any of it but not taking the meds is even worse. I keep reminding myself that it's just part of this life.
I have so much that, at times, complaining seems like I'm being ungrateful. A marriage of 37 years that survived my transition. We have 2 great adult children and 5 wonderful grandchildren.
Andrea, I understand that sometimes, even with all our 'good things', our medical issues can overwhelm us. That too will pass.
hugs
Brenda